Claudia Crocione recipient of the 2020 Black Pearl Award
The Black Pearl Awards shine a light on the remarkable efforts to build a brighter future for everyone living with a rare disease. We...
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I HAVE THE SAME RARE DISEASE THAT KILLED MY BROTHER
Katie Woods tells her story of living with HHT I was like all of the other kids at school, just that my doctor was in Cork and not in Dublin,
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HHT EUROPE ANNUAL MEETING – MADRID 2019
The annual meeting of HHT Europe 2019 was held in Madrid on 18 and 19 October. The delegates of our 12 member organisations met together with...
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