Meeting HHT Europe 2026
Summary March 13 and 14 at the Mercure Leonardo Da Vinci Hotel in Fiumicino. The main objective of this meeting is to provide an opportunity for...
Learn moreClaudia Crocione recipient of the 2020 Black Pearl Award
The Black Pearl Awards shine a light on the remarkable efforts to build a brighter future for everyone living with a rare disease. We...
Learn moreI HAVE THE SAME RARE DISEASE THAT KILLED MY BROTHER
Katie Woods tells her story of living with HHT I was like all of the other kids at school, just that my doctor was in Cork and not in Dublin,
Learn moreHHT EUROPE ANNUAL MEETING – MADRID 2019
The annual meeting of HHT Europe 2019 was held in Madrid on 18 and 19 October. The delegates of our 12 member organisations met together with...
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