European Reference Networks

European Reference Networks (ERNs) are virtual pan-European networks among healthcare providers. The ERNs gather highly-specialized experts to improve the management of all patients with rare diseases by providing accessible cross border healthcare.


VASCERN is the European Reference Network on Rare Multisystemic Vascular Diseases. They aim to facilitate discussion on complex / rare vascular diseases and conditions that require highly specialized treatment and concentrated knowledge and resources.

HHT Europe is actively involved in the VASCERN, representing patient views by participating in the European Patient Advocacy Group (ePAG) . All HHT European Organizations are in the HHT ePAG with an active volunteer that contributes to delivering the patient perspective, sharing ideas and making proposals. To learn more about VASCERN and ePAG activity don’t hesitate to explore

Click here for VASCERN flyer