OUR CAUSES

You can help lots of people by donating little. See our causes.

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Donate Blood & Save a Life

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Become a Volunteer

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Testimonials

What Our Donors Over the World Are Saying

Narrative Medicine

Narrative medicine can be very powerful. It gives the reader insight into the impact of the rare disease on the patients’ lives.

Many of our patients are willing to share what it is like to live with HHT and how it impacts their Quality of Life .  This helps foster awareness of the disease and creates empathy among patients and between clinicians and their patients.

Katie Woods-Ireland
Lorraine Franklin

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Brett Lewis

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Dianna Young

Nearest Events

Morbus Osler Selbsthilfe Annual Patient Doctor Conference

29 April 2022 0:00

Morbus Osler Selbsthilfe Annual Patient Doctor Conference

Morbus Osler Selbsthilfe Germany is happy to welcome all HHT families to our Conference at hotel “Rennsteigblick” that towers dominantly...

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HHT Ireland Annual Patient and Family Forum

7 May 2022 10:30

HHT Ireland Annual Patient and Family Forum

Time to come together online and support each other on our HHT journey. HHT Ireland is delighted to announce that our online Annual Patient &...

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