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X-WR-CALDESC:Events for HHT - More than a nosebleed
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DTSTART;VALUE=DATE:20260313
DTEND;VALUE=DATE:20260315
DTSTAMP:20261015T041152
CREATED:20260308T220647Z
LAST-MODIFIED:20260308T220647Z
UID:3850-1773360000-1773532799@www.hhteurope.org
SUMMARY:HHT EUROPE 2026 ROME MEETING
DESCRIPTION:On 13 and 14 March\, the annual meeting of HHT Europe will be held in Rome\, where important topics related to HHT will be updated\, examples of good practices and successes of national organisations will be presented\, and new projects will be promoted.\nThe main topics to be discussed are as follows: \n\nDrug Development – Understanding the process and Role of Patient Organisations\nWhat is in development – Horizon Scanning of Clinical Trials for HHT\nVaderis presents: VAD044\, Results of proof of concept study and introduction to the Phase III trial\nMapping of HHT Centres – overview and proposals\nIron Management in HHT\nAntiplatlet therapy in HHT patients – evidence from the multicentric PRIN study\nHow to use the consensus paper on sclerotherapy in your national setting\nNew consensus for assessing the severity of epistaxis\n\nOne of the most important parts of the conference is sharing the best and most successful practices of organisations and creating working groups to launch new and interesting projects. \n 
URL:https://www.hhteurope.org/event/hht-europe-2026-rome-meeting/
LOCATION:Mercure Rome Leonardo da Vinci Airport\, Via Portuense 2470\,\, Fiumicino\, Lacio\, 00054\, Italy
CATEGORIES:Conference
ATTACH;FMTTYPE=image/jpeg:https://www.hhteurope.org/wp-content/uploads/2026/03/Captura3.jpg
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BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20230506T103000
DTEND;TZID=Europe/Rome:20230506T170000
DTSTAMP:20261015T041152
CREATED:20230410T071002Z
LAST-MODIFIED:20230410T071002Z
UID:3801-1683369000-1683392400@www.hhteurope.org
SUMMARY:HHT Families Come Together in Ireland
DESCRIPTION:HHT Ireland is delighted to announce our 2023 Annual Patient Forum on Saturday 6th May\, 2023. \nThe event will be taking place in the Maldron Hotel\, Portlaoise. \n\n\n\n\nKick off will be 10.30am. A light lunch will be served for all who attend. \nYour invite will be emailed directly if you are a member of HHT Ireland. \nIf you are interested in learning more you can contact HHT Ireland: info@hhtireland.org \nMore details to follow with regards to our Agenda & guest speakers. Stay tuned! \n 
URL:https://www.hhteurope.org/event/hht-families-come-together-in-ireland/
LOCATION:Maldron Hotel Portlaoise
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20230428T160000
DTEND;TZID=Europe/Rome:20230429T170000
DTSTAMP:20261015T041152
CREATED:20230410T070501Z
LAST-MODIFIED:20230410T070501Z
UID:3797-1682697600-1682787600@www.hhteurope.org
SUMMARY:HHT Italia Patient Doctor Meeting - CAMP 2023
DESCRIPTION:The Annual HHT Physicians Patients Conference is a high-level informative and educational event involving leading Italian HHT experts and attended by more than 200 patients and family members in each edition.\nThe sessions are all chosen on the basis of the most frequently asked questions received at our help line with the addition of all the news in national and international scientific head.\nThe event always has a highly interactive nature by involving the audience in moments of discussion and with patient stories and small-group debates to delve into relevant aspects of the disease.\nCAMP therefore is the ideal venue to meet other rare HHT patients\, engage in face-to-face discussions with clinicians\, get up-to-date on new therapeutic offerings and research\, and above all spend hours in pleasant company.\nFree event\, registration required\, registration open at this link https://docs.google.com/forms/d/e/1FAIpQLSeGGhB4uZSJNJfL3Tdqe0Rl5zH0oLmVxy74FS6SNh86tPJUTw/viewform \n 
URL:https://www.hhteurope.org/event/hht-italia-patient-doctor-meeting-camp-2023/
LOCATION:Lacio
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BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20230421T080000
DTEND;TZID=Europe/Rome:20230422T170000
DTSTAMP:20261015T041152
CREATED:20230410T065434Z
LAST-MODIFIED:20230410T065434Z
UID:3789-1682064000-1682182800@www.hhteurope.org
SUMMARY:HHT Germany Annual Patient Doctor Meeting
DESCRIPTION:  \nHHT Germany annual meeting this year will take place in the Rhineland\, in Ratingen near Düsseldorf – from April 21 to 23\, 2023. \nIn a beautiful hotel not far from the Rhine we will again learn exciting and interesting aspects about HHT. \nBookings will again take place exclusively via the booking platform Doo. There will be an early bird discount until April 1\, 2023. \nRegistrations are possible under the following link: https://doo.net/veranstaltung/126237/buchung \n \n 
URL:https://www.hhteurope.org/event/hht-germany-annual-patient-doctor-meeting/
LOCATION:Ratingen
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220603
DTEND;VALUE=DATE:20220606
DTSTAMP:20261015T041152
CREATED:20160912T111913Z
LAST-MODIFIED:20220412T103906Z
UID:436-1654214400-1654473599@www.hhteurope.org
SUMMARY:HHT España  Annuale Conference
DESCRIPTION:His year the Spanish Annual Congress will have speakers specialized in obstetrics\, pediatrics and gynecology who will explain different aspects of the preimplantation embryo selection procedure. We will also have experts in HHT from internal medicine\, biology\, interventional vascular radiology\, genetics and rare disease units from all over Spain. We also want to offer practical workshops to learn techniques of nasal packing and first aid\, which surely we have all needed more than once\, for ourselves or to help our relatives. These workshops will be led by experts in ENT and nursing.\n\nOn the other hand\, we want to address some aspects about the legal situations that we find when processing referrals to other regions and obtaining disabilities in HHT.\n\nOur General Assembly to be held on the afternoon of Saturday June 4\, will see the  participation of our representatives  FEDER\, EURORDIS\, CIBERER and HHT EUROPE.\n\nFor more information and to book your participation: https://www.asociacionhht.org/2022/03/07/inscripcion-abierta-para-el-xiii-congreso-de-la-asociacion-hht-espana-en-valencia/?fbclid=IwAR2NngXBFH8ChLboR5fO_NMdFlq2kQPW84VnnIDwuQwhgR6_CYrrS2NqkqI
URL:https://www.hhteurope.org/event/is-a-nonprofit-internship-the-best-choice-for-you/
LOCATION:Valencia\, Av. de les Balears\, 2\, Valencia\, 46023\, Spagna
CATEGORIES:Conference
ATTACH;FMTTYPE=image/png:https://www.hhteurope.org/wp-content/uploads/2016/09/Schermata-2022-04-07-alle-13.08.26.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20220507T103000
DTEND;TZID=Europe/Rome:20220507T153000
DTSTAMP:20261015T041152
CREATED:20220412T104700Z
LAST-MODIFIED:20220412T104700Z
UID:3673-1651919400-1651937400@www.hhteurope.org
SUMMARY:HHT Ireland Annual Patient and Family Forum
DESCRIPTION:Time to come together online and support each other on our HHT journey. HHT Ireland is delighted to announce that our online Annual Patient & Family Forum will be held Saturday 7th May\, 2022 – Registration to our online Annual Patient & Family Forum 2022 now open at https://forms.gle/Qtm5vj1nZFznj89h9 RSVP: 1st May\, 2022.
URL:https://www.hhteurope.org/event/hht-ireland-annual-patient-and-family-forum/
LOCATION:Online via Zoom
CATEGORIES:Forum
ATTACH;FMTTYPE=image/png:https://www.hhteurope.org/wp-content/uploads/2022/04/Schermata-2022-04-07-alle-13.21.44.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220429
DTEND;VALUE=DATE:20220502
DTSTAMP:20261015T041152
CREATED:20220412T105210Z
LAST-MODIFIED:20220412T105210Z
UID:3681-1651190400-1651449599@www.hhteurope.org
SUMMARY:Morbus Osler Selbsthilfe Annual Patient Doctor Conference
DESCRIPTION:Morbus Osler Selbsthilfe Germany is happy to welcome all HHT families to our Conference at hotel “Rennsteigblick” that towers dominantly over the small village of Friechrichroda and allows wide views into the country. Both in the direction of Gotha\, as well as to the Rennsteig. \nIt will be a wonderful opportunity to spend time together\, collect expert information and also enjoy the area that is wonderful for Hiking.\nFor more information\, program\, booking and costs please visit this page: https://www.morbus-osler.de/de/aktuelles/2022/Jahrestagung_2022.php
URL:https://www.hhteurope.org/event/morbus-osler-selbsthilfe-annual-patient-doctor-conference/
LOCATION:Hotel Rennsteigblick in Friedrichroda\, Kurhausstraße 12\, Friedrichroda\, 99894\, Germania
CATEGORIES:Conference
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