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DTSTART;VALUE=DATE:20260313
DTEND;VALUE=DATE:20260315
DTSTAMP:20261015T074225
CREATED:20260308T220647Z
LAST-MODIFIED:20260308T220647Z
UID:3850-1773360000-1773532799@www.hhteurope.org
SUMMARY:HHT EUROPE 2026 ROME MEETING
DESCRIPTION:On 13 and 14 March\, the annual meeting of HHT Europe will be held in Rome\, where important topics related to HHT will be updated\, examples of good practices and successes of national organisations will be presented\, and new projects will be promoted.\nThe main topics to be discussed are as follows: \n\nDrug Development – Understanding the process and Role of Patient Organisations\nWhat is in development – Horizon Scanning of Clinical Trials for HHT\nVaderis presents: VAD044\, Results of proof of concept study and introduction to the Phase III trial\nMapping of HHT Centres – overview and proposals\nIron Management in HHT\nAntiplatlet therapy in HHT patients – evidence from the multicentric PRIN study\nHow to use the consensus paper on sclerotherapy in your national setting\nNew consensus for assessing the severity of epistaxis\n\nOne of the most important parts of the conference is sharing the best and most successful practices of organisations and creating working groups to launch new and interesting projects. \n 
URL:https://www.hhteurope.org/event/hht-europe-2026-rome-meeting/
LOCATION:Mercure Rome Leonardo da Vinci Airport\, Via Portuense 2470\,\, Fiumicino\, Lacio\, 00054\, Italy
CATEGORIES:Conference
ATTACH;FMTTYPE=image/jpeg:https://www.hhteurope.org/wp-content/uploads/2026/03/Captura3.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20220603
DTEND;VALUE=DATE:20220606
DTSTAMP:20261015T074225
CREATED:20160912T111913Z
LAST-MODIFIED:20220412T103906Z
UID:436-1654214400-1654473599@www.hhteurope.org
SUMMARY:HHT España  Annuale Conference
DESCRIPTION:His year the Spanish Annual Congress will have speakers specialized in obstetrics\, pediatrics and gynecology who will explain different aspects of the preimplantation embryo selection procedure. We will also have experts in HHT from internal medicine\, biology\, interventional vascular radiology\, genetics and rare disease units from all over Spain. We also want to offer practical workshops to learn techniques of nasal packing and first aid\, which surely we have all needed more than once\, for ourselves or to help our relatives. These workshops will be led by experts in ENT and nursing.\n\nOn the other hand\, we want to address some aspects about the legal situations that we find when processing referrals to other regions and obtaining disabilities in HHT.\n\nOur General Assembly to be held on the afternoon of Saturday June 4\, will see the  participation of our representatives  FEDER\, EURORDIS\, CIBERER and HHT EUROPE.\n\nFor more information and to book your participation: https://www.asociacionhht.org/2022/03/07/inscripcion-abierta-para-el-xiii-congreso-de-la-asociacion-hht-espana-en-valencia/?fbclid=IwAR2NngXBFH8ChLboR5fO_NMdFlq2kQPW84VnnIDwuQwhgR6_CYrrS2NqkqI
URL:https://www.hhteurope.org/event/is-a-nonprofit-internship-the-best-choice-for-you/
LOCATION:Valencia\, Av. de les Balears\, 2\, Valencia\, 46023\, Spagna
CATEGORIES:Conference
ATTACH;FMTTYPE=image/png:https://www.hhteurope.org/wp-content/uploads/2016/09/Schermata-2022-04-07-alle-13.08.26.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20220429
DTEND;VALUE=DATE:20220502
DTSTAMP:20261015T074225
CREATED:20220412T105210Z
LAST-MODIFIED:20220412T105210Z
UID:3681-1651190400-1651449599@www.hhteurope.org
SUMMARY:Morbus Osler Selbsthilfe Annual Patient Doctor Conference
DESCRIPTION:Morbus Osler Selbsthilfe Germany is happy to welcome all HHT families to our Conference at hotel “Rennsteigblick” that towers dominantly over the small village of Friechrichroda and allows wide views into the country. Both in the direction of Gotha\, as well as to the Rennsteig. \nIt will be a wonderful opportunity to spend time together\, collect expert information and also enjoy the area that is wonderful for Hiking.\nFor more information\, program\, booking and costs please visit this page: https://www.morbus-osler.de/de/aktuelles/2022/Jahrestagung_2022.php
URL:https://www.hhteurope.org/event/morbus-osler-selbsthilfe-annual-patient-doctor-conference/
LOCATION:Hotel Rennsteigblick in Friedrichroda\, Kurhausstraße 12\, Friedrichroda\, 99894\, Germania
CATEGORIES:Conference
ATTACH;FMTTYPE=image/png:https://www.hhteurope.org/wp-content/uploads/2022/04/Schermata-2022-04-07-alle-13.33.12.png
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